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Episode 15: Emergency Planning from a Rural Perspective
At some point you will have an emergency. Take some time when your child is well to prepare vs relying on yourself to think clearly when you are in a crisis.
Episode 14: Danny’s Dose changes EMS protocols
If you or your child is one of the 400,000 people (in MN alone) across 13 different conditions that need life-saving meds in the case of emergency this episode is for you!
Episode 13: What is ABA Therapy?
Benefits, controversies, and success stories of ABA Therapy with Twin Cities Recovery Center owner Obsa Mohamed and Board Certified Behavior Analyst Claire Friedman, MA
Episode 12: The Path to an Accessible Playground
Betsy Julien shares the two year journey to a fully inclusive playground at Glen Lake Elementary, where Haley’s son, Felix, is a student.
Episode 11: Adult size Changing Stations become LAW in MN
The Journey to Adult-Sized Changing Stations with Changing Spaces co-chairs Sarah St. Louis and Tram.
Episode 10: Hope is Powerful Medicine
Empowering Families: Inside HopeKids Non-profit Organization and their Inspirational Program
Episode 8: What is Palliative Care?
Not clear on what Palliative care is all about? You’re not alone. Get familiar with Dannell, a palliative care family advocate and clinician educator.
Episode 7: Let's go! In a plane.
Plane travel nationally or internationally is a beast, but there are ways to make it MUCH easier!
Episode 6: Let's go! In a car.
Traveling is hard, let’s talk about how we can make it easier when you travel by car.
Episode 5: Swipe Right, then what?
Single moms talk dating and how to navigate a relationship when you have a child with medical complexity.
Episode 4: CDCS, DD, WTF?
A fellow Minnesota mama, social worker and guru in the complex world of waivers and “the system” talks to us about where to even start.
Episode 3: Our Glass Children
A talk with two teenagers about their experience growing up with a medically complex brother.
Episode 2: Who's your Daddy?
Two dads talk about their experience raising a medically complex child.
Episode 1: What is Rarely Familiar?
Tram, Haley and Jen share the story of how they met, a brief intro to their kids and their hopes and dreams for Rarely Familiar.